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Evidence

Articles relating to patient narrative and other topics relevant to our services. We regularly update these lists. Please contact us if you come across recent articles that we should include!

We take an evidence-based approach to everything we do. Below are articles relating to patient narrative and other topics relevant to our services. We regularly update these lists. Please contact us if you come across recent articles that you think we should include!

I’m convinced that only sick people know what health is.        And they know it by its very loss.

Good, B (1994)

Patient Narrative

  1. Ashton, C.M., et al., A stories-based interactive DVD intended to help people with hypertension achieve blood pressure control through improved communication with their doctors. Patient Education and Counseling, 2010. 79(2): p. 245-250.
  2. Campbell, T., et al., The impact of patient narratives on self-efficacy and self-care in Australians with type 2 diabetes: Stage 1 results of a randomized trial. Health Promotion International, 2013.
  3. Cody, R. and C. Lee, Behaviors, beliefs, and intentions in skin cancer prevention. Journal Of Behavioral Medicine, 1990. 13(4): p. 373-389.
  4. de Wit, J.B.F., E. Das, and R. Vet, What works best: Objective statistics or a personal testimonial? An assessment of the persuasive effects of different types of message evidence on risk perception. Health Psychology, 2008. 27(1): p. 110-115.
  5. Erwin, D.O., et al., Increasing mammography practice by African-American women. Cancer Practice, 1999. 7(2): p. 78-85.
  6. Hopfer, S., Effects of a narrative HPV vaccination intervention aimed at reaching college women: A randomized controlled trial. Prevention Science, 2012. 13(2): p. 173-182.
  7. Houston, T.K., et al., Culturally appropriate storytelling to improve blood pressure: A randomized trial. Annals Of Internal Medicine, 2011. 154(2): p. 77-84.
  8. Kiene, S.M. and W.D. Barta, Personal narrative as a medium for STD/HIV intervention: A preliminary study. Journal of Applied Social Psychology, 2003. 33(11): p. 2327-2340.
  9. Kreuter, M.W., et al., Narrative communication in cancer prevention and control: A framework to guide research and application. Annals of Behavioral Medicine, 2007. 33(3): p. 221-235.
  10. Kreuter, M.W., et al., What makes cancer survivor stories work? An empirical study among African American women. Journal of Cancer Survivorship, 2008(2): p. 33-44.
  11. Kreuter, M.W., et al., Comparing narrative and informational videos to increase mammography in low-income African American women. Patient Education and Counseling, 2010. 81 (Supplement 1): p. S6-S14.
  12. Larkey, L.K., et al., Storytelling for promoting colorectal cancer screening among underserved Latina women: A randomized pilot study. Cancer Control, 2009. 16(1): p. 87.
  13. Lawton, J., Lay experiences of health and illness: Past research and future agendas. Sociology of Health & Illness, 2003. 25(3): p. 23-40.
  14. McQueen, A. and M.W. Kreuter, Women’s cognitive and affective reactions to breast cancer survivor stories: A structural equation analysis. Patient Education and Counseling, 2010. 81: p. S15-S21.
  15. Ubel, P.A., C. Jepson, and J. Baron, The inclusion of patient testimonials in decision aids: Effects on treatment choices. Medical Decision Making, 2001. 21(1).
  16. Williams, A., et al., A multifactorial intervention to improve blood pressure control in co-existing diabetes and kidney disease: A feasibility randomized controlled trial. Journal of Advanced Nursing, 2012. 68(11): p. 2515-2525.
  17. Williams-Brown, S., D.M. Baldwin, and A. Bakos, Storytelling as a method to teach African American women breast health information. Journal of Cancer Education, 2002. 17(4): p. 227-30.
  18. Winterbottom, A.E., et al., Patient stories about their dialysis experience biases others’ choices regardless of doctor’s advice: An experimental study. Nephrology Dialysis Transplantation, 2012. 27(1): p. 325-331.
  19. Yi, M. and E.Y. Park, Effects of breast health education conducted by trained breast cancer survivors. Journal of Advanced Nursing, 2012. 68(5): p. 1100-1110.

Digital Interventions

  1. Hebden, L., et al., A mobile health intervention for weight management among young adults: a pilot randomised controlled trial. Journal of Human Nutrition and Dietetics, 2014. 27(4): p. 322-332.
  2. Hurling, R., et al., Using internet and mobile phone technology to deliver an automated physical activity program: randomized controlled trial. Journal Of Medical Internet Research, 2007. 9(2): p. e7-e7.
  3. Morgan, A.J., A.F. Jorm, and A.J. Mackinnon, Email-based promotion of self-help for subthreshold depression: Mood Memos randomised controlled trial. The British Journal Of Psychiatry: The Journal Of Mental Science, 2012. 200(5): p. 412-418.
  4. Morgan, A.J., A.F. Jorm, and A.J. Mackinnon, Self-Help for Depression via E-mail: A Randomised Controlled Trial of Effects on Depression and Self-Help Behaviour. PLoS ONE, 2013. 8(6): p. 1-10.
  5. Reinke, L.F., et al., Feasibility of a Webinar for Coaching Patients With Chronic Obstructive Pulmonary Disease on End-of-Life Communication. American Journal of Hospice & Palliative Medicine, 2011. 28(3): p. 147-152 6p.
  6. Spohr, S.A., et al., Regular article: Efficacy of SMS Text Message Interventions for Smoking Cessation: A Meta-Analysis. Journal of Substance Abuse Treatment, 2015. 56: p. 1-10.

Self-management

  1. Barlow, J., et al., Self-management approaches for people with chronic conditions: A review. Patient Education and Counseling, 2002. 48(2): p. 177-187.
  2. Battersby, M.W., et al., A randomised trial of the Flinders Program to improve patient self-management competencies in a range of chronic conditions: study rationale and protocol. Australian Medical Journal, 2010. 1(3): p. 198-204.
  3. Battersby, M.W., et al., A randomised controlled trial of the Flinders Program (TM) of chronic condition management in Vietnam veterans with co-morbid alcohol misuse, and psychiatric and medical conditions. Australian & New Zealand Journal of Psychiatry, 2013. 47(5): p. 451-462.
  4. Bodenheimer, T., et al., Patient self-management of chronic disease in primary care. The Journal of the American Medical Association, 2002. 288(19): p. 2469-2475.
  5. Bodenheimer, T., K. McGregor, and C. Sharifi, Helping patients manage their chronic conditions. California HealthCare Foundation Report, 2005.
  6. de Silva, D., Helping people help themselves. A review of the evidence considering whether it is worthwhile to support self-management. 2011, The Evidence Centre: UK.
  7. Foster, G., et al., Self-management education programmes by lay leaders for people with chronic conditions (review). Cochrane Database of Systematic Reviews, 2007(4).
  8. Horsburgh, M., et al., Lessons learnt from attempting to assess the evidence base for a complex intervention introduced into New Zealand general practice. Quality and Safety in Health Care, 2010. 19(5): p. e50.
  9. Jordan, J.E. and R.H. Osborne, Chronic disease self-management education programs: challenges ahead. 2007.
  10. Lorig, K., Chronic disease self-management: A model for tertiary prevention. American Behavioral Scientist, 1996. 39(6): p. 676-683.
  11. Lorig, K., et al., Community-based peer-led diabetes self-management: A randomized trial. Diabetes Educator, 2009. 35(4): p. 641-651.
  12. Lawn, S. and A. Schoo, Supporting self-management of chronic health conditions: Common approaches. Patient Education and Counseling, 2010. 80(2): p. 205-211.
  13. Newbould, J., D. Taylor, and M. Bury, Lay-led self-management in chronic illness: A review of the evidence. Chronic Illness, 2006. 2(4): p. 249-261.
  14. Novak, M., et al., Approaches to self-management in chronic illness. Seminars in Dialysis, 2013. 26(2): p. 188-194.

Digital PROMs

Palliative Care Outcomes Collaborative (PCOC) SAS tool: 

Daveson BA, Allingham SF, Clapham S, Johnson CE, Currow DC, Yates P, et al. (2021) The PCOC Symptom Assessment Scale (SAS): A valid measure for daily use at point of care and in palliative care programs. PLoS ONE 16(3): e0247250. https://doi.org/10.1371/journal.pone.0247250

References from PCOC Digital SAS PROM information document:

  1. ‘Electronic patient reported outcomes (e PROMs) in palliative cancer care: a scoping review’.
  2. Meirte J, Hellemans N, Anthonissen M et al (2020) Benefits and disadvantages of electronic patient-reported outcome measures: systematic review. JMIR Perioper Med 3:e15588.
  3. Yu JY, Goldberg T, Lao N, Feldman BM, Goh YI (2021) Electronic forms for patient reported outcome measures (PROMs) are an effective, time-efficient, and cost-minimizing alternative to paper forms. Pediatr Rheumatol 19(1):1–9.
  4. De Wolf-Linder S, Dawkins M, Wicks F et al (2019) Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique. Palliat Med 33(8):1058–1068.
  5. Oldenburger E, Neyens I, Coolbrandt A et al (2022) Using ePROMs for follow-up after palliative radiotherapy: an exploratory study with patients and health care providers. Patient Educ Couns 105(7):2355–2361.
  6. Karamanidou C, Natsiavas P, Koumakis L et al (2020) Electronic patient reported outcome-based interventions for palliative cancer care: a systematic and mapping review. JCO Clin Cancer Inform 4:647–656.

Talk is part of the attempt to normalise in the face of illness and threatening symptoms, not simply a commentary on it.

Bury, M (2001)